What If? - Why Statistics Shouldn't Scare You!

One of the most routine pieces of information that the medical industry, for it is an industry, throws at us is a Statistic. Statistics are there to show you how likely you are to contract some disease, to have a boy or girl, to getting a divorce, or find a new job.  There seem to be so many studies that we now have a statistic for everything...including how many times you're likely to blink in a minute! How could we go on without that piece of data?

We have to be honest though; we like them. We quote them to others to deter them from some decision or action. If they favor us, we advertise them.

Statistical tables

Well, one thing I surely learned from taking Statistics in Grad School, is that if you manipulate data just right...you can come up with a number of statistics... and not all will agree.  In other words, much of data can be manipulated to show the statistic you are after.

And yet, without statistics we're loathe to trust information lest it merely be opinion.

Let's think about that for a minute.  I'm going to go out on a limb and ask... is there anything truly that is more than opinion?To be tagged a trusted statistic, the number must be based on factual data... that may or may not hold up in time.

How much time is long enough? 5 years worth of data? 20 years? Up until such time as new data is discovered?

Some of you are going to gasp in horror, shake your heads in dismay, and remind me about all the theories we accept as truth since they are based on scientific FACTS! You know the proven, repeatable, unbiased, honest-to-goodness, theories.

Bar Graph

Hmmm... can you think of something we believed to be true for decades that was later dis-proven?  I mean besides the Earth being flat, and that the Sun rotates around the Earth.

How about:

There are 109 Elements in the Period Table New information: Since 1994, six new elements have been discovered.

or:

The first mammals evolved about 155 million years ago. New information – “The shrew-like animal would have run under the feet of dinosaurs at the start of the Jurassic period, nearly 195 million years ago … Hadrocodium wui pushes back by another 40 million years its first appearance in the fossil record.”.

Here are a couple of sites just for fun...

1. Medical Facts that Have Been Proven to be Wrong

2. What Scientific Laws or theories have been proven wrong?

All this is to say that as we add new information to our data, our statistics or theories have to change.  With me so far?

Ok, here's the "WHAT IF"...

Let's go back to the Medical Industry... that slow to move, slow to assimilate new information, give me 3 - 10 years of similar data before I can make a decision, industry.

  1. Medical statistics in the West are based on Western Medicine's view of valid data.  Yes?
  2. In the U.S. and even more so abroad, many, many people incorporate "alternate"  methods into their every day or healing regimen. Yes?
  3. When a patient visits a traditional medical practitioner, their condition is assessed from a "symptom" and "data I learned about that symptom" perspective. Yes?
  4. A patient is hardly ever asked what their eating habits, supplementation, attitudes and belief's are as part of the standard, one size fits all data sheet they fill out.  Yes?
  5. A diagnosis is based on those symptoms (I am trying to distinguish these from causes of illness) and on scientific data, clinical that is.  Yes?
  6. You are then given a statistic if relevant to your situation, and with Cancer patients, boy are we happy to quote statistics.  Yes?
  7. You leave programmed with the belief that you will fall in one of those statistical groups, and left to wonder which it will be... because you really have no control over that...it will depend on how your 'disease' responds to treatment. Yes?

Here's my belief and something you should think about seriously

To make things simple I'm going to choose two people to illustrate my theory. We're going to name them B and K.

B and K have recently had mammograms that show a small mass in one of their breasts. B and K are informed they should have biopsies.

B is conservative, has not done a lot of thinking about health trends or a lot of research about cancer treatment approaches.  She is a believer in Traditional medicine and trusts that her Oncologist has all the answers.

B opts for a needle biopsy, since she is assured they are safe.

K is progressive, she is a hiker, has acupuncture for benign symptoms and  is very interested in nutrition and Eastern medicine. She immediately scours the Internet for the latest news in Breast Cancer research.

B doesn't want a needle biopsy.  She can't believe it's 100% safe, since in her mind there is no way that pulling a needle filled with cancer cells isn't going to leave a few of those microscopic cells along the needle path. She opts for a lumpectomy.

They have the same type of cancer, and their Oncologist suggests the traditional Chemo drugs for that type, followed by a course of radiation. The statistics are shared with each of them... since they were both caught early there is a 78% chance that nothing will develop, and a 22% chance of recurrence. Chemo adds another 5-6% benefit.

For our example, they both choose to have Chemo.

They both meet with the resident Nutritionist who tells them about foods and supplements to avoid during treatment, and how to modify their diet for cancer prevention.  He gives each a handout about Chemo side effects and some suggestions to alleviate them (most are drugs to take).

K leaves feeling down, a little overwhelmed by the information and the changes she has to make.  Her husband is supportive and upbeat, and her sister is distressed, a little worried about her own fate now. K's home is comfortable, clean and in a suburban neighborhood. K has two children, 14 and 16, and a small dog. Her brother has left her a message on her answering machine encouraging her to talk to a Doctor he trusts before making a decision.

B leaves feeling anxious to get home so she can initiate a search for a Complimentary Therapy practice.  Her boyfriend sends a few emails to solicit info from friends.  They live in a two-story condo and have custody of his 12-year-old son. The house is a little messy, but furnished tastefully.  Flowers stand in a vase in the living room, and a parakeet in a large cage near the patio door. Two of B's friends are waiting for her when she arrives...each has brought a gift from the Farmer's market.  They cook lunch together while she tells them what her approach is going to be.

K and B go through the same treatment cycle.

I m not sure...

K

takes the suggested meds for side effects.  Eats well and tries to be positive. Her husband goes to most of the sessions with her, alternating with her concerned sister.  K suffers from fatigue, has a rather emotional reaction to her hair loss, and is cautiously optimistic.  She walks for 20 minutes most days and tries to act brave in front of her sister so as not to worry her.  Her kids are taking things well and help around the house.

No one suggests she have alternate types of care during the course of her treatment. She's not sure she trusts acupuncture, when a friend mentions it.

B

finds and consults with a Nutritional Oncologist. She immediately starts on a long list of supplements each specifically targeted to either support her immune system, help the Chemo be more effective by unmasking cancer cells, or counteract the side effects. She continues acupuncture to move the toxins out as quickly as possible and alleviate nausea, and joins her two friends in a Yoga class twice a week.

Her boyfriend sets up a rotating meal prep schedule with some of their friends, so that for the 4 days after Chemo they don't have to worry about cooking.  They give each cook an approved ingredient list. He makes sure B has plenty of uplifting books to read, is ready with an amusing story when he gets home, and the three watch funny movies after dinner and homework are done.

Pretty woman

B meditates, is determined to move through this process and into a healthier body, and goes out with the girls to shop for a crazy wig when her hair falls out.

Outcomes

A year and a half later, K has a recurrence almost in the exact same spot as her previous tumor. She opts for a mastectomy and new course of treatment. She mostly sticks with her diet, and takes a few standard vitamins.

B on the other hand, is an active volunteer in the Cancer Wellness Community 3 days a week after work. She has completely changed her lifestyle and eating habits and continues with a maintenance Supplement regimen per her Nutritional Oncologist.  Her friends, inspired by her, have cut out some of the bad foods they used to indulge in. She has one more scan in 6 months and will proclaimed Cancer-Free.

And What do the Statistics Say?

K and B's Oncologist, ignorant of all the ingredients that went into each woman's healing process, chalks one person up as benefiting from the XYZ Chemo combination, and one woman needing a second round with XQW treatment, and per statistics not as good a prediction for long-term cancer-free survival.

Where are the Stats that take into account the needle biopsies vs. lumpectomy?

Where are the Stats that traces eating habits and the effect of well-studied supplementation?

And where are the Stats that show how one's attitude and faith skew the odds in one's favor?

Where are so many of the potentially high-impacting variables accounted for in the Medical Industry data?

No where.

And so from my heart I say:

  1. You are not a Statistic.
  2. You are in charge of your healing process.
  3. Educate yourself and be open-minded.
  4. Surround yourself with happy, positive people.
  5. Don't mess with the recommended Cancer Diet, it's Medicine!
  6. Cultivate an unshakeable faith in your ability to heal
  7. You are NOT your illness... it is passing.
  8. Laugh, laugh, laugh... It really IS the Best Medicine!

~ Be Well. ♥

Chemotherapy

Chemotherapy is the treatment of cancer with drugs that can destroy cancer cells by impeding their growth and reproduction. Though chemotherapy is an effective way to treat many types of cancer, chemotherapy treatment also carries a risk of side effects. Some chemotherapy side effects are mild and treatable, while others can cause serious complications. The drugs used are made to destroy fast-reproducing cells. However, some healthy cells also grow quickly and cancer treatments destroy these cells as well.

The fast-growing, normal cells most likely to be affected by certain treatment drugs are blood-forming cells in the bone marrow, as well as cells in the digestive track, reproductive system, and hair follicles. Thankfully, most normal cells recover quickly when treatment is over. Therefore, most side effects gradually disappear after treatment ends. During the course of your cancer journey, you may experience many, a few, or no side effects.

Some newer anti-cancer treatments — such as Herceptin for breast cancer — may cause heart damage as well, although the effect is often temporary and reversible.

If your doctor is considering using a chemotherapy drug that may affect your heart, you may undergo heart function testing before and during treatment. Be sure to ask questions if you have any misgivings.

Chemotherapy drugs that may cause nausea and vomiting

Certain chemotherapy drugs are more likely than are others to cause nausea and vomiting. Some medications associated with significant risk of these side effects include:

  • Altretamine (Hexalen)
  • Busulfan (Busulfex, Myleran)
  • Carmustine (Bicnu)
  • Cisplatin (Platinol)
  • Cyclophosphamide (Cytoxan)
  • Dacarbazine
  • Doxorubicin (Adriamycin)
  • Epirubicin (Ellence)
  • Estramustine (Emcyt)
  • Etoposide
  • Ifosfamide (Ifex)
  • Lomustine (Ceenu)
  • Mechlorethamine (Mustargen)
  • Procarbazine (Matulane)
  • Streptozocin (Zanosar)
  • Temozolomide (Temodar)

You will most likely be given a prescription medication to help with these side effects.  There are also nutritional foods and supplements that can help.  Acupuncture has been known to reduce the occurrence of nausea and vomiting, and is a wonderful complimentary therapy.

Hair  Loss

Chemotherapy may cause hair loss all over your body — not just on your scalp. Sometimes your eyelash, eyebrow, armpit, pubic and other body hair also falls out. Some chemotherapy drugs are more likely than others to cause hair loss, and different doses can cause anything from a mere thinning to complete baldness. Talk to your doctor or nurse about the medication you'll be taking.

I found that a wig helped me through this phase, and I bought eyebrow tattoos online that worked well.  A light eyeliner helped me feel better about losing my eyelashes.  Three weeks after the end of Chemo, my hair began to grow back.

'Chemo Brain'

Chemo brain is a common term used by cancer survivors to describe thinking and memory problems that can occur after cancer treatment. Chemo brain can also be called chemo fog, cognitive changes or cognitive dysfunction.

Signs and symptoms of chemo brain may include:

  • Being unusually disorganized
  • Confusion
  • Difficulty concentrating
  • Difficulty finding the right word
  • Difficulty learning new skills
  • Difficulty multitasking
  • Fatigue
  • Feeling of mental fogginess
  • Short attention span
  • Short-term memory problems
  • Taking longer than usual to complete routine tasks
  • Trouble with verbal memory, such as remembering a conversation
  • Trouble with visual memory, such as recalling an image or list of words

Signs and symptoms of cognitive or memory problems vary from person to person and are typically temporary, often subsiding within two years of completion of cancer treatment.

Again, there are many nutritional supplements and foods that can help you with Chemo Brain.  See my post on Managing Side Effects.

Books:

  1. Questioning Chemotherapy (1996) Equinox Press. ISBN 978-1881025252
  2. Integrative Strategies for Cancer Patients: A Practical Resource for Managing the Side Effects of Cancer Therapy;  Elena J. Ladas , Kara M. Kelly 
  3. Living well with cancer: a nurse tells you everything you need to know about managing the side effects of your treatment; by Katen Moore, Libby Schmais

Accupuncture for Chemotherapy Side Effects

Personal Experience

I made sure to set up Acupuncture appointments 4 days after each Chemo session.  The reason for the delay was to wait until I was no longer 'glowing' or toxic! :)

According to my Oncologist, I went through Chemo treatments much better than many other patients. I attribute that to the supplements I took and specific foods I ate that targeted the side effects, to acupuncture and to massage therapy sessions, as well as walking 20 minutes most days.  My nausea was minimal and only lasted 24 hours, with only one dose of the meds.

I still have acupuncture once a month.  It helps my liver stay happy and the toxins to keep moving out of my system, as well as removing any energy block.  Be sure to ask for a referral to a TCM trained acupuncturist.  Mine is a wonderful woman who apprenticed with a Chinese doctor in China.

What is acupuncture?

  Acupuncture applies needles, heat, pressure, and other treatments to certain places on the skin to cause a change in the physical functions of the body. The use of acupuncture is part of traditional Chinese medicine (TCM). TCM is a medical system that has been used for thousands of years to prevent, diagnose, and treat disease.

Acupuncture is based on the belief that qi (vital energy) flows through the body along a network of paths, called meridians. Qi is said to affect a person’s spiritual, emotional, mental, and physical condition.

How does it Work?

According to TCM, qi has two forces, yin and yang. Yin and yang are opposite forces that work together to form a whole. The forces of yin and yang depend on each other and are made from each other in an unending cycle, such as hot and cold, day and night, and health and disease. Nothing is ever all yin or all yang, both exist in all things, including people.

Many of the major organs of the body are believed to be yin-yang pairs that must be in balance to be healthy. When a person's yin and yang are not in balance, qi can become blocked.  Blocked qi causes pain, illness, or other health problems.  TCM uses acupuncture,  diet, herbal therapy, meditation, physical exercise, and massage to restore health by unblocking qi and correcting the balance of yin and yang within the person.

Acupuncture may cause physical responses in nerve cells, the pituitary gland, and parts of the brain.  These responses can cause the body to release proteins, hormones, and brain chemicals that control a number of body functions.  It is proposed that, in this way, acupuncture affects blood pressure and body temperature, boosts immune system activity, and causes the body's natural painkillers, such as endorphins, to be released.

Which Side Effects Can it Relieve?

1. The strongest evidence of the effect of acupuncture has come from clinical trials on the use of acupuncture to relieve nausea and vomiting. Several types of clinical trials using different acupuncture methods showed acupuncture reduced nausea and vomiting caused by chemotherapy, surgery, and morning sickness. It appears to be more effective in preventing vomiting than in reducing nausea.

A study of acupuncture, vitamin B6 injections, or both for nausea and vomiting in patients treated with chemotherapy for ovarian cancer found that acupuncture and vitamin B6 together gave more relief from vomiting than acupuncture or vitamin B6 alone.

A study of acupressure for relief of nausea and vomiting was done in women undergoing chemotherapy. The study found that acupressure applied to an acupuncture point with a wristband helped to decrease nausea and vomiting and reduced the amount of medicine the women used for those symptoms.

2. In clinical studies, acupuncture reduced the amount of pain in some cancer patients. In one study, most of the patients treated with acupuncture were able to stop taking drugs for pain relief or to take smaller doses.

3. A randomized study of patients with cancer-related fatigue found that those who had a series of acupuncture treatments had less fatigue compared to those who had acupressure or sham acupressure treatments.

4. Hormone therapy may cause hot flashes in women with breast cancer and men withprostate cancer. Some studies have shown that acupuncture may be effective in relieving hot flashes in these patients.

5. Human studies on the effect of acupuncture have shown that it changes immune system response.

Source: http://www.cancer.gov/cancertopics/pdq/cam/acupuncture/patient/page1